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	<title>spoken for &#187; reflections</title>
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	<description>hmmm... what?</description>
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		<title>reflections</title>
		<link>http://spoken-for.org/archives/2010/01/25/2858/</link>
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		<pubDate>Tue, 26 Jan 2010 05:09:20 +0000</pubDate>
		<dc:creator>Val</dc:creator>
				<category><![CDATA[Days Go By]]></category>
		<category><![CDATA[nicu]]></category>
		<category><![CDATA[photos]]></category>
		<category><![CDATA[reflections]]></category>
		<category><![CDATA[thing 2]]></category>

		<guid isPermaLink="false">http://spoken-for.org/?p=2858</guid>
		<description><![CDATA[A friend who has a special needs daughter told me quite some time ago that it&#8217;s a good idea to keep all a kid&#8217;s info and medical history, etc., in a notebook so you can easily find everything and all the important info for the doctors. I tried it in September but didn&#8217;t get far. [...]]]></description>
			<content:encoded><![CDATA[<p>A friend who has a special needs daughter told me quite some time ago that it&#8217;s a good idea to keep all a kid&#8217;s info and medical history, etc., in a notebook so you can easily find everything and all the important info for the doctors.  I tried it in September but didn&#8217;t get far.  I realized last week, though, that I am already getting fuzzy about dates.  The last time I was asked when K was removed from oxygen completely and then when she had the last ultrasound of her brain&#8230; my mind failed me.  So tonight I&#8217;ve sat for the last hour and a half, going through my old entries here and even photos to see when this or that happened and to get it into a notebook.  Because, apparently, just as I think things might really be coming to an end, that this story might be written for the most part, I&#8217;m told I need to start getting her some physical therapy and that she&#8217;ll need to see a neurologist in March.</p>
<p>It&#8217;s really been a ride to go through these entries, not even a year later yet.  It&#8217;s amazing how fast time has flown.  Where did it all go?  I can&#8217;t believe 2009 went so fast.  And really, my heart melts when I look at those pictures of K from April and May&#8230; how did I get so lucky that she would go from this:</p>
<p><a href="http://www.flickr.com/photos/anela/3433018403/" title="Without the eye patches by anela, on Flickr"><img src="http://farm4.static.flickr.com/3571/3433018403_cff0468929.jpg" width="300" alt="Without the eye patches" /></a></p>
<p>To this:</p>
<p><img src="http://spoken-for.org/wp-content/uploads/2010/01/DSC_2622-300x201.jpg" alt="" title="DSC_2622" width="300" height="201" class="alignnone size-medium wp-image-2859" /></p>
<p>In only a few short months?</p>
<p>But, again, apparently the war isn&#8217;t over yet.  We&#8217;ll see next month (hopefully) if she needs kidney surgery and in March, hopefully the neurologist will tell us she&#8217;s just fine.  We shall see what we shall see&#8230;  But in the meantime, I&#8217;m not worried, I know things will be fine.</p>
<p>Though, I also wish I posted here more.  Obviously, there are times I need those entries to remind me of things.  :P</p>
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